Neonatal Intensive Care Units (NICUs) are all designed differently. Some have private rooms where moms and babies stay together – with beds for moms. Others may have many infants in a single room or pod and hardly even a comfortable chair available much less a place to sleep. Regardless, NICUs often have a lot of […]
NICU & Special Needs Babies
Some babies come in to the world and need medical care. The level of care they need can vary widely – from a few days in a small intensive care nursery to many weeks and even months in a large specialty hospital. This can be very frightening for mothers and families. At a time when many people are feeling joyful, moms and families with infants in the hospital have a wide range of feelings, including a lot of fear and worry. You are not alone! Over 220,000 newborns are admitted to intensive care nurseries after they are born every year in the US. This means that there are many new mothers who begin their journey in a way that they may not have expected and definitely did not want. New mothers with hospitalized babies ALL need extra support and care.
If your baby was born with a condition that is rare and that you might not understand there are two websites that might be helpful to you. The Genetic and Rare Diseases Information Center offers a searchable database and resources. DiseaseInfoSearch is another site that can be very helpful as well.
Topics in NICU & Special Needs Babies
Premature Birth and Breastfeeding
Premature Birth and Breastfeeding
Premature (early) birth (babies born before 37 weeks of pregnancy) can be a hard experience for a mother and family. In the United States, 1 in every 10 infants are born preterm to non-Hispanic White mothers. The rate of preterm birth is greater for non-Hispanic Black mothers. After preterm birth, many babies need additional support. […]
Taking Care of You
Taking Care of You
Women with infants in hospital intensive care nurseries (also called units) are more likely to have had a c-section, a scary birth experience, and to have chronic health conditions compared to other moms. At the same time, moms are often so intensely focused on their babies, that they (and others) forget about their own well-being. […]
The Balancing Act
The Balancing Act
While it is hard for new moms to balance taking care of a newborn, themselves, and other children / family members, this becomes very challenging with a baby in the hospital. Some moms struggle with the need for sleep as well as the need for being in the NICU with their baby. Some families have […]
Transitioning Home from the NICU
Transitioning Home from the NICU
Taking your baby home from the birthing facility is an exciting and joyful event. This transition can also cause anxiety and feelings of nervousness, especially for parents of babies that have needed extra care in the Neonatal Intensive Care Unit (NICU). Getting settled in these situations, whether your baby was in the hospital for a […]